Results
The CF Tummy Tracker team would like to thank all participants who took the time to take part in the development of CF Tummy Tracker® through the CARDS-CF research study from 2022-2024.
Through this work we have pilot tested CF Tummy Tracker® - an electronic questionnaire to help track tummy symptoms for people with CF.
This study was published in March 2025 in Mayo Clinic Proceedings: Digital Health.
The link to the manuscript can be found here. It is also available here as a PDF.
You may also like to read the lay summary of this research here as a PDF.
Links to publications relating to this work can be found here:
1) Calthorpe RJ, Saumtally HA, Howells LM, Goodchild NJ, Evans BC, Elliott Z, et al. CF Tummy Tracker: A Cystic Fibrosis–Specific Patient-Reported Outcome Measure for Daily Gastrointestinal Symptom Burden. Mayo Clinic Proceedings: Digital Health. 2025;3(2):100203. DOI: 10.1016/j.mcpdig.2025.100203
2) Calthorpe RJ, Saumtally H, Howells LM, Goodchild N, Evans B, Elliott Z, et al. P278 CF Tummy Tracker: ACF-specific patient reported outcome measure for daily gastrointestinal symptom burden. Journal of Cystic Fibrosis. 2024;23:S154. DOI: 10.1016/S1569-1993(24)00579-4
3) Calthorpe RJ, Goodchild N, Gleetus V et al. A grumbling concern: an international survey of gastrointestinal symptoms in cystic fibrosis in the modulator era. NIHR Open Res. 2023 DOI: 10.3310/nihropenres.13384.1
4) Calthorpe R, Hayee B, Howells L, Elliott Z, Horsley A, Goodchild N, et al. 192 Gastrointestinal symptoms in a cystic fibrosis transmembrane conductance regulator modulator era - an international survey. Journal of Cystic Fibrosis. 2022;21:S112-S3. DOI: 10.1016/S1569-1993(22)00882-7
What’s next for CF Tummy Tracker®?
The first step was to create a CF-specific tool to track daily tummy symptoms in CF. To do this we created CF Tummy Tracker®.
Before it can be used in clinical trials, the results of this study need to be validated. This is to make sure that the results that were found when participants used CF Tummy Tracker® on the app in this study are the same when it is used in other studies. This helps make sure that CF Tummy Tracker® is reliable to be used in clinical trials.
CF Tummy Tracker® is currently being used as part of the GRAMPUS-CF research study (Gut Research Advancing a Mechanistic and Personalised Understanding of Symptoms in Cystic Fibrosis study) at the University of Nottingham. This research will identify clusters of tummy symptoms which are experienced by people with CF. They will study how these clusters occur and how they might be treated. If you’d like to find out more about the study, or want to take part please visit their study website.
